One option, the couple said, was to let Charlie die at home. The European Court of Human Rights ruling Tuesday said the baby would not be allowed to go to the USA and that the hospital was no longer obligated to keep him on life support.
Charlie has been receiving specialist treatment at Great Ormond Street Hospital since October 2016. This condition causes progressive muscle weakness and brain damage. He can not hear or see, and is unlikely to be able to develop either ability. Further, the fact that they're not allowed to choose when and where to withdraw life support on their terms is maddening. The courts sided with the doctors and hospital administrators each time.
Charlie's parents even had set up a crowdfunding page to raise money for the treatment and they have collected £1.4million for the USA treatment which is being denied to Charlie even by the court itself.
Medical professionals and the highest courts in the United Kingdom and Europe, however, have argued that no amount of treatment can ever make Charlie well. "It is very unlikely that he will improve with that therapy".
Last week the Court of Appeal upheld the High Court's ruling that doctors should be allowed to move Charlie to palliative care.
The prospect of the nucleoside treatment having any benefit is as close to zero as makes no difference.
"We and most importantly Charlie have been massively let down throughout this whole process".
Charlie's parents and their attorney could not immediately be reached for comment, and the hospital said it could not provide specific details about Charlie's case.
However, the court in Strasbourg, France, ultimately ruled that the imperative to act in Charlie's best interests and not prolong his suffering outweighed the vanishingly small likelihood of successful treatment.
The parents of Charlie Gard have been fighting for his life much of his short, devastating life.
Chris Gard and Connie Yates had been expecting their 10-month-old's life support to be turned off on Friday.
That's right. The hospital refused to allow the mother to breast feed her child and refused to allow them to seek alternative treatment on their own dime, at no cost to taxpayers.
Miss Yates told Mail Online: 'We have been in talks today with Great Ormond Street and they have agreed to give us a little bit more time with Charlie. Please respect our privacy while we prepare to say the final goodbye to our son Charlie'. That is our last wish, if it went this way, the way it's gone.
"We've promised our little boy every single day that we would take him home because that is a promise we thought we could keep", Yates said in a video statement Friday, according to BBC News.
They said no to both. "We were told he has to die in that hospital".
In a Facebook post, the pair said they had been "massively let down". They can't come before tomorrow.
Together with Charlie's parents we are putting plans in place for his care, and to give them more time together as a family.