They shared their exploits in videos and photos of themselves dumping buckets of ice water on their heads and nominating friends and family to do the same while encouraging others to donate to essential ALS research.
(MENAFN - Colombo Gazette) Patrick Quinn, one of the men who helped drive the wildly popular Ice Bucket Challenge fundraising campaign, has died aged 37.
Amyotrophic lateral sclerosis, more commonly known as ALS, is a progressive, neurodegenerative disease.
Frates died last year at age 34, seven years after his diagnosis.
"Pat fought ALS with positivity and bravery and inspired all around him", it said.
The "Quinn for the Win" group posted on its Facebook page Sunday that Quinn "was a blessing to us all in so many ways".
Ms Senerchia's husband had the disease.
After starting the challenge, Quinn said "The Ice Bucket Challenge connected with a sweet left hook to the jaw of ALS and shook the disease up, but by no means is this fight over".
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"The Ice Bucket challenge dramatically accelerated the fight against ALS, leading to new research discoveries, expansion of care for people with ALS, and greater investment by the government in ALS research". An estimated 5 per cent to 10 per cent of ALS cases are believed to be hereditary, but the cause is unknown and there is no cure.
Quinn was born in Yonkers, New York and also grew up there.
The organization added that Quinn continued to raise awareness and funds after popularizing the challenge.
The Yonkers, N.Y., native was diagnosed with the nervous system disease - which affects nerve cells in the brain and spinal cord, making it hard to walk, speak, eat, swallow and breathe - just after his 30th birthday.
So Quinn's and the late Pete Frates's supporters (Team Frate Train) ran with the concept, turning "the challenge into the biggest social media phenomenon in history", according to the ALS Association.
In 2015, the association honored Quinn, among others, as "ALS Heroes" - an award given to people living with the disease who have had a significant positive impact on the fight against it.
"We will never stop fighting together".